Useful Downloads and Other Web Sites
The following helpful resources may make it easier for you to recognize a rare condition called CAPS (Cryopyrin-Associated Periodic Syndrome), let others know about your disease, and get treatment with ILARIS® (canakinumab).
ILARIS® Patient Brochure
This brochure contains information about CAPS and ILARIS® in a downloadable format that can be read on screen or easily printed.
Talking to Your Doctor
This guide contains simple suggestions for a conversation with your doctor about CAPS (Cryopyrin-Associated Periodic Syndrome). Print this checklist and bring it with you to the doctor's office to help remember the symptoms you want to discuss.
A Letter for Patients to Send to Their Family Members
This letter can be personalized and sent to other family members to let them know about CAPS (Cryopyrin-Associated Periodic Syndrome) and their potential risk for the disease. The letter can be completed by a patient or caregiver.
ILARIS® Patient Support Program Brochure
This brief brochure explains the role of the ILARIS® Patient Support Program and the services provided.
Note: The resources above require Adobe® Acrobat® Reader for viewing and printing.
Click here to learn more Facts About CAPS and How ILARIS® Can Help Patients With CAPS.
Web Sites
There are support groups and organizations online that offer more information about CAPS. Visit any of the sites below to learn more:
- Genetics Home Reference Guide
- National Organization for Rare Disorders (NORD)
- National Institutes of Health Office of Rare Diseases Research
Remember, your doctor's advice is the best advice to follow.
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