Helping Others Cope With CAPS (Cryopyrin-Associated Periodic Syndrome)

Some Ways You Can Help a Loved One

CAPS Symptoms may be difficult to manage alone. Here are a few things recommended by an expert in CAPS that you can do to help someone you care about cope with CAPS:

• 1. Prevent many symptoms by making sure that they avoid cold and dress warmly
• 2. Suggest they treat episodes by soaking in a warm bath
• 3. Recommend they drink warm liquids to ease a flare of symptoms

But in a lot of cases, these changes may not help in FCAS (Familial Cold Autoinflammatory Syndrome) or Muckle-Wells Syndrome (MWS). The following are some other things you can do to help your loved one:

• 1. Since CAPS is a genetic disease the Speaking With Family About CAPS Letter may be a helpful tool once someone you love has been diagnosed
• a. This brief letter can be personalized and sent to family members to let them know about CAPS and their potential risk for the disease
• 2. Encourage your loved one to talk to a doctor right away about any CAPS Symptoms that may have been noticed
• 3. If ILARIS^® (canakinumab), or any other medication, has been prescribed by a physician, keeping a calendar may help your loved one stick to the treatment schedule
• 4. If your loved one is prescribed ILARIS^®, suggest they take advantage of the ILARIS^® Patient Support Program for Patients With CAPS to help overcome financial challenges when seeking treatment with ILARIS^®