ILARIS^® Patient Support Program for Patients With CAPS (Cryopyrin-Associated Periodic Syndrome)

Novartis is dedicated to supporting patient care

FCAS (Familial Cold Autoinflammatory Syndrome) and Muckle-Wells Syndrome (MWS) are 2 conditions in a group of rare diseases called CAPS.

• Although there may be only about 300 patients with CAPS in the United States, experts believe that not all patients with CAPS have been diagnosed yet because of poor disease recognition

For patients with CAPS, the ILARIS^® Patient Support Program has been designed by Novartis Pharmaceuticals to support you through the challenges you may face. Read on to learn about our free support program and services.

Assistance With the Insurance Process

The ILARIS^® Patient Support Program provides patients with information and tools to assist in managing their treatment with ILARIS^® and helps to identify resources that can assist with payment for their medication, including:

• Contacting your insurance company
• Verifying insurance benefits and investigation of coverage
• Assisting with prior authorizations and appeals, if needed
• Providing educational materials
• Referring you to a co-pay assistance program that may help reduce eligible patients' out-of-pocket costs, such as the National Organization for Rare Disorders, also known as the NORD Premium and Co-pay Assistance Fund

If You Do Not Have Insurance

If you have no insurance or your insurance does not cover treatment with ILARIS^® (canakinumab), additional patient support may be available for those who qualify. You may be referred to other resources, such as:

• The Novartis Patient Assistance Now Program , which is an easy-to-use resource that offers Novartis drugs free of charge to those who qualify, as well as additional information about how to take care of their health
• Partnership for Prescription Assistance (PPA). The ILARIS Patient Support Program can also refer potentially eligible patients to the Partnership for Prescription Assistance. The mission of PPA is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. The PPA offers a single point of access to more than 475 public and private programs, including nearly 200 offered by pharmaceutical companies

Getting Started Is Easy

If a physician diagnoses you with CAPS (Cryopyrin-Associated Periodic Syndrome), and decides that ILARIS^® is right for you, he or she will contact the Patient Support Program to enroll you and initiate the process of obtaining ILARIS^®. Your healthcare professional's office has the Service Request Form (SRF) necessary to enroll diagnosed patients in the ILARIS^® Patient Support Program. You can learn more now by downloading the following booklet:

Visiting Nurse

If a physician diagnoses you with CAPS and decides that ILARIS^® is right for you, he or she can arrange for ILARIS^® to be administered at your home by a visiting nurse.